We are here every step of your journey...

For families facing the heart-breaking knowledge that they will almost certainly outlive their child; we provide specialist care and support services for children with life-shortening conditions, due to illness or injury, from birth until they no longer need us.

The hospice is designed to provide a safe, home-from-home environment for the children, young people and their families we support.

Our comfortable and spacious hospice, based at Grace Road in Trentham, is superbly equipped with facilities to meet the various needs of our children and young people and to create treasured memories.

How We Care

Once referred to the hospice, each family is allocated their own Care Co-ordinator who will be a familiar face to guide them through the care and support available both at the hospice and in the wider community.

Each child and young adult that accesses our services has a detailed, co-ordinated care plan which is integrated with all aspects of care. The Care Co-ordination team helps to reduce the pressure many families face when their son or daughter is diagnosed with a life-shortening illness.

Whatever a family needs, the Care Co-ordination team can help families get the support they need.

What Makes Us Special

 

One of the favourite rooms is our sensory room. The room was fully refurbished in 2016 and it features a vibrating bed so that deaf children can feel the music, bubble tubes and bright colourful lights. All children have a play profile which documents the best settings for them and our care team use the room for physio so that the children don’t even realise they’re doing exercises as they’re engrossed by the colours and lights.

 

The garden is a safe space which is fully wheelchair accessible so that disabled children and able-bodied children can play together.

 

The family lounge feels and looks like a normal family home, there’s a soft play area, lots of toys, books and a large TV. Families can truly relax in here, having a chat and a cup of tea while their children relax and play together.

 

At the heart of the building is the play room with walls covered in arts, crafts and colourful decorations. A play session often involves:

  • Sensory play using bubble tubes, ultra violet light and fibre optics.
  • Story time using sensory story sacks, tactile toys and music.
  • Messy play with spaghetti, gloop, shaving foam and jelly.

 

Our special music room allows all our children and young adults to enjoy and experience music. There is a whole range of traditional musical instruments to play with – one of the most popular is of course the drum kit!

There is also a range of specialist interactive equipment which allows children and young adults to feel, or see, music with a sensory board to feel vibrations and computer software which converts notes into colours and pictures.

 

The bedroom corridor has 8 bedrooms with different beds, allowing us to accommodate a premature baby or a teenager. Our rooms are comfortable, homely and are also equipped with hoists and air tanks to support our families.

Parents and siblings are also welcome to stay while their child is looked after by our care team. This gives parents a break from the daily routines and a chance to have a full night’s sleep, knowing their child is safe.

  • Our Services
  • Young Adult Care
  • End of Life Care
Our Services

Play and Activities

Our play team ensures that there are always lots of fun things to do, whether it’s one-to-one or in a group, all activities are adapted to enable each service user's full engagement. Play sessions can also get very messy and usually involve plenty of paint, glue and glitter.
Specialised play activities are offered such as sensory massages to enable children and young adults to develop new skills and experiences. Our play team are Makaton trained, along with other communication methods, to ensure our service users’ voices are always heard and valued.

Short Breaks and Respite

Whether it’s for a few hours, a day, or longer, our respite stays are often a lifeline for parents and carers. For the children, teenagers or young adults, staying with us can be like a mini-holiday - the chance to meet up with friends and have lots of fun.
For someone used to being a carer 24 hours a day, 7 days a week, 365 days per year, it’s chance to do things other people take for granted - sit on the sofa and watch a movie, spend time with their other children and even enjoy an uninterrupted night’s sleep.
We can also care for the child or young adult in the comfort of their own home, meaning that they’re in an environment they know, while their parents or carers make the most of a few hours off.

Counselling and Support

Wherever a family is in their journey, our team of highly trained counsellors and therapists are able to offer each member of the family a wide range of emotional support services. Whether one-on-one or in a group, the emotional support we provide will be tailored to each individual’s needs and may include music, art or play alongside more traditional forms of counselling.
Counselling sessions are tailored to the family member’s needs and give them the time and space to talk about issues that are affecting their day to day lives.
In addition to one-to-one counselling, we also offer support groups where parents, siblings and carers can get together with others facing the same challenges as them. Our Mens group, Bereaved Mums support group, Siblings group and Parent and Carer support group are co-ordinated by our Care and Counselling Teams.

Young Adult Care

Transition into Adulthood

From arranging medical and hospital appointments, to how they receive the equipment they need to care for their child, much of the support parents have counted on since their child was born is no longer available to them in the adult services world.

Having supported families every step of the way, we made a decision that we’d no longer discharge at 19 and would instead be there for as long as they need us. Our focus is very much on supporting young adults to live their lives and to enjoy every experience they can.

We are currently supporting young adults aged between 19 and 24 who are living with life-threatening or life-limiting conditions.

Our Young Adult Service provides day opportunities, social opportunities, community support, opportunities to develop independence, counselling and social work support.

Denise Coates Foundation Building for Young Adults

The Denise Coates Foundation Building for Young Adults was opened in 2019 after a generous donation from The Denise Coates Foundation.

The building is welcoming and designed with the opinions of our young adults in mind who told us they wanted space and independence.

The design and themes were all decided by our young people, who took part in workshops and focus groups and created mood-boards with their ideas. They were very clear that they wanted a modern, cool, “student” feel.

Chill Out Space

The main room has lots of space to accommodate wheelchairs and the furniture is modular so that it can be easily moved around. There is a huge TV on the wall which is essential for gaming and cinema nights.

On the main wall there’s a mural created by Doddz which incorporates local elements including Wedgwood, Alton Towers and the Staffordshire knot. The fitted kitchen is a space for young adults to learn independent living skills. The work bench, cooker and sink are “rise and fall” so they can be adjusted to the height of the wheelchairs.

Bedrooms

On the upper floor there are five spacious bedrooms, each with access to an en-suite bathroom.

One of the bedrooms is big enough for two beds so that young adults can have sleepovers with their friends. While the young adults still have one to one care, the bedrooms have a more independent feel with facilities including a shaving point, a rise and fall sink and TV.

Therapy Rooms

There’s also a range of therapy rooms for physiotherapy and medical assessments and a counselling room for the young adults to talk safely and confidentially to our trained counsellors.

We also have an on-site health and wellbeing room where the young adults can have their hair and nails done, enjoying some pamper time.

End of Life Care

Bereavement Support

 

End of life care and bereavement support is a priority for the team here at the hospice.

The care team works alongside the family to ensure that their wishes are at the centre of care provision. Providing a calm and comfortable environment for the family to be together is vital. The team can support with symptom management as well as the significant emotional and practical care each family needs. The team can help to create final memories and experiences for families.

Garden Room

 

Within The Donna Louise building, we have a private bereavement suite, The Garden Room, where a family can spend time saying goodbye to their child after they’ve passed away.

It’s a comfortable space, with its own private access. There’s a lounge, kitchen, bathroom and two bedrooms. Families can use the rooms however they choose, personalising them with photos, teddies and their own bedding.

The Garden Room is available for those who have died at the hospice or elsewhere.

“It’s such a fun place, there is so many exciting things to do. It’s like a little holiday for her – she cries when she has to leave!”

-Parent of Child

Frequently Asked Questions

Tell us Your Thoughts

Offering Feedback

We take the quality of our services very seriously and we are always striving to ensure we are providing the very best care for our patients and their families. If you would like to feedback any compliments, comments or concerns on the service you have received, please share your thoughts on our Quality and Compliance page.

Tell Us Your Thoughts

Children’s Care Services Reception: 01782 654440

 

Monday-Saturday 9am-5pm